2 months ago

Post from Gabin High School about one of their 1st year students who is in need of an operation abroad. She's ambitious and hardworking and strong, says Ela... have a read.

"Every day I have moments of helplessness and doubt. Sometimes when I see laughing teenagers walking down the street, enjoying life to the fullest, I ask myself. Why can't my daughter be in their place? - Then once again my heart breaks into a million pieces...".

Victoria suffers from Ehlers-Danlos syndrome, Arnold Chairi syndrome with cavernoma, Klippel-Feil, has multiple spinal malformations, polyneuropathy and vascular anomalies.

Over a year ago, she underwent a very serious surgery out of the country.
Unfortunately, as a result of complications, rupture of the dura, which often occurs in Ehlers-Danlos Syndrome - Wiktoria was exposed to further surgeries. During her hospital stay she was infected with staphylococcus, which led to a central nervous system (CNS) infection. Until now, the wound after the operation is not fully healed - fistulas are formed.

We believed very much that one day this nightmare would end and everything would be fine - unfortunately, it is not so. Complications, loose stabilization, inflammation have a very bad influence on Victoria's mental and physical condition. Other complications and neurological deficits appear. Currently Wiktoria has lost visual field in one eye, the other eye is in better condition.

Wiktoria needs reoperation and repair of the deficits. Six reference centers in Poland refused to carry out such an operation. The only Clinic in Berlin Charite extended a helping hand to Wiktoria and expressed consent and willingness to perform the operation again. The clinic will perform two complicated operations in short time intervals.

The first operation will be a revision of the dura, taking out the current stabilization. Then antibiotic therapy is to be instituted. A second surgery will be performed a few weeks apart by a team of orthopedists and neurosurgeons. Currently Victoria's spine is in a very bad condition, so the orthopedists will try to repair the deformed spine with its straightening and stabilization from c0 to th8. We are full of hope and faith that this attempt will be successful. This is a very difficult and complicated operation - above all, it involves a great deal of risk.

We feel fear, anxiety, but we have no other choice. Our only goal is Victoria's health and life. Unfortunately, money is an obstacle in gaining this goal. The costs of the operation are enormous and exceed the family's means. Thanks to the help of wonderful people we managed to secure more than 300 thousand zlotys for Wiktoria's surgery. At the moment we still need about 50 thousand zlotys to pay for the hospital and monthly accommodation in Berlin.

"This is the only and last chance for Wiktoria. It's a shadow of hope for a normal life, a dream come true for our daughter. She wants to live, just like you - without pain and suffering. That's why, as a mom, I'm asking you for help on this uneven road to the finish line, where at its end is the "normal" life of my child. "

"Helping one person won't change the whole world,

But it can change the world for one person..."

We ask for your help!

Translated with www.DeepL.com/Translator (free version) ... See MoreSee Less

Walka o zdrowie Wiktorii | Pomagam.pl

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WALKA O ZDROWIE… „Codziennie dopadają mnie chwile bezsilności i zwątpienia. Czasem, gdy widzę idące ulicą roześmiane nastolatki, które czerpią z życia pełnymi garściami - zadaje sobie ...